How to Stay Grounded While You Wait

Waiting for a transplant can bring a mix of emotions. Learn ways to stay grounded, manage uncertainty, and take care of your mental health through the process.

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4-6 min read

Medically reviewed by Jessie J. Danforth RN, BSN

Last updated: September 8, 2026

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Waiting for a transplant can feel unpredictable and emotionally draining. It’s common to move through a mix of emotions, from anxiety to frustration, hope and fear—sometimes all in the same day. This kind of emotional ups and downs is a normal part of the process, not a sign that you’re not coping. Support and simple coping strategies can help you stay steady as you move through it.

When the waiting starts to wear on you

Over time, the experience of waiting can change. What may begin as hope can slowly turn into fatigue, frustration, or even moments of feeling stuck.

These ups and downs are a normal part of waiting, and most people don’t move through them in a straight line. Some days feel manageable, while others may feel heavier.

You might notice yourself feeling:

  • Drained by the constant waiting

  • Caught between progress and uncertainty

  • Frustrated by how much of it is out of your control

One way to move through this is by reframing the wait. Instead of thinking of it as passive, it can help to focus on what’s within your control: your health, your routines, and how you prepare for what’s next.

Learn more about ways to stay active while you wait.

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When a call doesn’t lead to transplant

Getting a call for a transplant that doesn’t move forward is more common than many people expect and it can be emotionally difficult. These situations happen because the care team needs to be certain the kidney is the right match for you. Taking that extra step helps protect your long-term health, even if it’s disappointing in the moment.

You might experience:

  • A surge of hope followed by disappointment

  • A sudden emotional drop or “crash”

If this happens, it can help to:

  • Give yourself permission to feel what you’re feeling

  • Remind yourself that this process is about finding the safest, best match for your long-term outcome.

  • Reach out for support, and talk with others who have been through it before and can relate.

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5 Tips for staying grounded

1. Stay connected Keep in touch with your transplant psychologist or psychiatrist, a counselor, or people you trust. You don’t have to go through this alone.

2. Let yourself feel—but then create space It’s ok to experience difficult emotions. Try to acknowledge them without letting them take over your entire day.

3. Focus on what you can control You may not control the timing, but you can focus on your health, your routines, and how you prepare.

4. Ground yourself physically Small actions can help you feel more steady. Spend time outside, move your body, or create moments of calm in your day

5. Ask for help early on Support is part of your care. Reaching out for emotional or mental health support is a strong and important step.

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There’s no “right” way to feel during this time. Some days will be harder than others, and that’s part of the process. Staying grounded isn’t about having it all figured out, it’s about taking things one day at a time and continuing forward. And that in itself deserves credit.

Stories and perspectives from transplant patients

Managing mental well-being is difficult at any stage in life and no matter what you’re dealing with. But when you’re dealing with a chronic illness like chronic kidney disease, it’s even more difficult. And when you crash into dialysis like I did, it makes it that much more difficult. I didn’t know anything about dialysis or this process. So first I started educating myself as much as I could.

MonicaTwo-time kidney transplant recipient
On finding community

For me, because I was in center dialysis, there was a family of other patients who were going through the same thing that I was going through. Having them there to talk to and ask questions, and how are you feeling, and what are your plans, what are you doing to look for a living donor, all that stuff, I think that truly helped me.

JeanKidney transplant recipient

We have to know that not everything is going to run smoothly. You’re going to deal with these trials, but you’re also going to have some triumphs. I asked people that go through this process with me to never give up. I tried to have this positive outlook that things will get okay.

ChrisTwo-time kidney and pancreas transplant recipient
On waiting for a transplant

Even 2 years could feel like 5 or 10 years, but don’t give up. You might see a lot of people on dialysis in your center getting that phone call, and you might feel a little tad jealous and be like, why can’t it be me? Don’t worry, you will have your chance. You will have your turn. Don’t give up.

MalaniTwo-time kidney transplant recipient
On emotions before and after

This too shall pass. Nothing is permanent. The joyful moments are not going to last forever. The sad moments are not going to last forever. The difficult moments are not going to last forever.

MaryTwo-time kidney transplant recipient
On being on dialysis

It definitely takes a mental toll on you, and whatever it is you need to do to get through it, to find your joy, because there’s still joy being on dialysis. I still travelled. You know, I worked with the social worker and the admin at the dialysis center. They set me up with treatment while I went to Disney Who thinks about doing dialysis when you’re at Disney World, the happiest place on Earth?

JeanKidney transplant recipient

The views expressed are those of the patient based on their individual experience. 
Experiences and outcomes may vary from person to person.

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CareDx is committed to providing scientifically supported educational content for transplant recipients and caregivers. All content is for educational purposes only and is not intended to serve as medical advice or replace guidance from your healthcare provider. Always seek the advice of your transplant team with any questions you may have regarding your specific medical condition.

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